There was once a place of safety in my home, a place where I could leave Leah so that I could be sure she was not on one of her curiosity field trips …………. which is all part of growing up, but its much better to have mom supervising those exciting field trips because Leah, loves to explore all the wrong places, like the garbage bin, sometimes she pops a left over tidbit into her mouth, she has munched on a worm not to mention the poor defenseless snail who also lost his life in a tasting incident that happened a few months ago.
But not to stray away from the subject at hand…………………… the safe place was once known as a camp cot, we would put Leah in it if we needed a ” hands free moment” and we were content that no insects were being harmed, but I now have no safe place any longer, Leah has performed a “Prison Break” and she has done it with a smile, so today the trusty camper that has serverd us well is not longer of use………….. but it has become an excelent toy box!!!!!
So I have my hands full with my little “escapeologist ”
look at that naughty face
Today Is a very significant day for me…………… today I celebrate 6 years of marriage to a wonderful man, how wrong they were about us babes!!!! its been the best 6 years of my life, and you have been an amazing father to our 3 beautiful daughters. Someone asked me………… ” So what have you got to show for your 6 years?? besides having lots of dept that you did not have 6 years ago and 3 children that cramp your freedom” My answer to that was “We in it together, we learn, respect and trust one another we support one another and we will never be lonely” needless to say she had no comeback response to my answer!!!! So my love….. here is to 600 more anniversaries, but that does not mean Im going to stop moaning abut were the laundry basket is!!!!!! 🙂 🙂 🙂
ASHLEY AND CHARMAINE
So here is the significant part…………………. today exactly 2 years ago on a Wednesday at 2:30pm just to be precise I was told that my baby had a “Serious Genetic Mutation” and they were not sure what quality of life she would have or, even worse they were not sure how long she would live after her birth……..
“HOW WRONG THEY WERE”
Over the past few days, I have been in e-mail contact with Shebas Aunt, they are an amazing family, and I admire their strength and strong sense of gratitude and positivity they have displayed during this difficult time. In one of her e-mails she shared some of her feelings concerning Shebas passing and I cant help but feel I have to share those moving words with you, I think you will agree with me after reading what she has said that they are indeed a humble blessed family……..
“When my niece Sheba was born…I appreaciate the things in this world and realize that God give us something and someone with purpose… and when Sheba died I understand that life is too short, so we must enjoy and love everything and everyone around us. I am beginning to accept that our little Sheba is gone…I know this happened because its God’s will. Actually, Every time I went out of our house i simply looked at people and smiled…especial when I saw parents with child that is not “normal”… like kids with Cerebral palsy, Down syndrome, Autistic, Dwarfism…I love them all! Because I know God sent them here on earth for us “normal” people to realize how lucky we are to have them.”
Introducing Shebas family, and one of Shebas Special little friends named Erica(Achondroplasia), they live all the way in the Philippines but thanks to technology we can now all get to meet them!!!
This mum of 4 looks stunning don’t you think!!!! whats your secret!!!
Little Erica and Leah will both be 2 in October!!!!
I feel so blessed to have met so many amazing people!!
For the past few days I have been wondering if this blog has been worth it, I have been trying so hard to try and make a difference in the way “normal” people perceive the world of others that may be suffering from a mental of physical handicap, in fact I have been so consumed by this driving force to somehow change the world for my little girl that I realized i am actually standing on the brink of total break down!!!!
I have gone as far as not checking e-mails to see if I had received any comments, or updating the blog for a few days, I realize that I was just digging a hole and getting comfortable not having to deal with Achondroplasia for a while………………..but I cant do that because Achondroplasia lives with me, and I wont hide it, I refuse to be one of those parents who hide and discourage their child just because he or she is different….. so her I am, pulling myself together and brushing off the negativity that could so easily have consumed me……. I believe i am bigger than this, and somehow no matter how small I do hope people will hear me and I do hope that I can make the world change its way of thinking for Leah, even if its only a fraction of change.