Big day for our big girl

Leah is about to embark on a new journey, it’s a brand new start to her life and it’s a whole new start for me as well. We will be starting main stream school, it’s no longer the protective environment of pre-school it’s a step up to a “not so enclosed” environment, it’s a step into a word were she will be advancing academically and it’s the start  of learning how to live and deal with the “tall” world.

Now I know it may seem like I’m being dramatic, but this is my platform to be true and honest, I am very emotional at thought of this event and yes this is not the first child I’m sending off to school but this  time it’s a bit different not just for me but for our whole family. This is Leah, our little girl who changed everything about our lives from the moment she took her first breath.

One of my weaknesses in life is where I tend to think ahead of time and I find myself stressing about all the “what if moments” and inevitably nothing really happens. On a recent shopping trip some kids stopped to point and make fun of Leah, the look in her eyes made me feel as if someone had stuck their hand through my chest and ripped out my heart, but I had to suck it up and remind her that she is beautiful and she shouldn’t worry about what people do or say. It’s these moments that make me develop “sending Leah to school anxiety” but as much as I hate to admit it, it’s these moments that is going to be part of her life and now is the time she will start to learn how to deal with these situations without me being there.

I wish I could protect her from everything that it’s hurtful but I know that this is not possible. I do believe a sheltered life is not going to make her a very productive adult in future, she has to go and grow in the world made for tall people, and I have to let go and make sure I always remind her that she is awesome and beautiful and she can do anything she sets her mind to. I will be sure to take lots to pictures and post them for all to see but for now… Wish me luck 🙂


Lots of new starts

Happy New year to all and I hope your year ahead filled with all that is good!! Last year was kind of a slow blog year for me…. but that is all about to change this year 2013 has its fair share of excitement in store for us. Leah will be starting main stream public schooling so I look forward to see her progress. I must admit I am struggling to shake my protectiveness but this day was bound to come so expect lots of pictures and updates on her progress.

I will be keeping a close eye on the BMN-111 human trials starting soon and I will try my best to update on the progress on a few of our little ones who are partaking in these trials. If this proves to be successful it will truly be an amazing medical achievement as it could potentially eliminate the need for decompression surgery both early and late in life, as well as surgeries to correct obstructive sleep apnea (tonsillectomy/adenoidectomy for the purposes of opening up the airway, etc).

So here is to a 2013 filled with positive energy and lots of updates 🙂