Im Just Little Not Deaf………..

Table Mountain

So my last (What does the future hold) post has sparked a bit of unhappy reaction by my South African friends that are reading my blog. I have been accused of wanting to run away!!!!! And that I’m not making the best of things in South Africa, both my husband and I have jobs; we own a home and a car, blah, blah, blah why would you want to leave and start over…. I understand their arguments, but let me explain to you were I am coming from.

 

I did not say I am definitely leaving I said I am “considering” leaving, and if I do decide to leave it will not be for my benefit but to my children’s… education and future opportunities, and especially for Leah. Thing are not fair and equal in South Africa here are a few example for you….

Leah is due to have a CT scan and if I do this privately it’s going to cost R4000.00, so we try the Government Hospital do you think they were willing to help? NO… they say, “ because you and your husband are employed and earning a fixed income you have to be billed” How much I ask? R3800.00???????? Can I pay it off over 6 months? “ No 3 months” How do they determine what I can and can’t afford??? You look like you can afford it?? My Gosh I’m still trying to recover from Leah’s birth bill.

Lets get one thing clear, I’m not looking for hand outs or wanting free treatment but try to accommodate me…At least look at my monthly expenses and see that I am telling the truth when I say I cant afford the whole amount upfront, but I can pay the whole amount in monthly installments… but I guess that’s not good enough. I don’t want to go on about our health care situation in this country, but people lie about their status, and they get free treatment or huge reductions on the treatment bill, so why don’t I do the same and just lie and abuse the system, you see I’m not like that and if I do… it makes things tough for the people that really needs the medical help its because of those people that abuse our health system that Leah has to suffer, but nothing is being done to stop the abuse and nobody is checking to see who these people are.

Example 2. I found a support group called Little People of South Africa, I sent them an e-mail, I called I got my hopes up thinking I have found support at home, but I am still waiting for a reply and no one answers my calls so……….. Is that what you define as support? I get more pleasure and support from the people I met through Knoahs Blog and the friends who comment on Leahs blog, I define that as support even more so I define them as friends who share in each others pain and joy.

Lets touch on crime in South Africa, its sad that I cant allow my girls to play alone in front of their own home without adult supervision, because they might get snatched, its nothing new kids go missing in South Africa EVERYDAY its become so common that the media does not report every case because there are so many missing kids!!!! We received a letter from Nicole and Simone’s school warning the parents to be punctual when the pick their kids up at the end of the school day, as a little girl was almost snatched in front of the school gates luckily, she screamed and someone came to her aid, the man who tried to snatch her managed to get away, so he is still out there. My little girl attend this school, its all just becoming to close for comfort, lets not talk about the night the cops came shooting down the road we live in, pleading with the residents to lock all door and windows, because six men had just robbed a fast food store and hijacked a car, and these armed thieves decided to run down our street and hide in the surrounding properties, poor Simone was so freaked out the next day she was to afraid to go into the backyard because she was convinced one of the robbers were in the yard. My brother is a jogging enthusiast, there is nothing as awesome as taking an early morning jog on the Table mountain path ways, breathing in the fresh air and taking in the splendid views, but you know what, he cant do that on his own he now has to go in a group or jog where its fairly busy because Yes…. they are robbing the joggers and hikers and old people that go for their daily walks on the mountain, they sit in the bushes pounce on you and beat you up and take what they can!!!!!! How Sick

And Last but not Least, and the most important, Leah’s acceptance into society, there is a huge problem with the acceptance of people with disabilities in South Africa, I want her to be all that she can be I want her to reach her full potential , its funny people seem to think that if you are physically different in appearance, there has to be a mental problem as well, some of my friends speak to Leah and shout at her as if she is hearing impaired? Some of my so called friends has not been to visit since her birth …. I cant wait for the day when she can say  “ Will you be quiet  I’m just little not deaf” What a splendid day that will be, but for now I will say it for her. Im sure any mother would do the same.

What does the future hold?

Its been a week of utter stress, the whole family except me were down with tonsillitis, I was hoping Leah would skip the bug ,and i was pumping her with immune boosters but, no such luck, here little voices is gone and she is running a fever, my work wont allow me time off to nurse her back to health, so tomorrow morning at 7:30 I have to pluck my sleeping baby from her warm bed put her in the car, take the girls to school then drop her off at my mom,only to hear her crying as I leave, because as you know Babies feel much better when they have their moms around them especially when they are ill.

My mind has been a bit of a mudded up mess for the past few days, I have been doing lots of thinking as to what future my kids have in South Africa, I love this country with all my heart, it has to be the most beautiful place on earth, but what is the use of beauty when it is stained with aggressive violance, especially against children, where else have you heard of raping an 8 month old baby!!!! and getting an 9 month prison sentence??? I never thought I would say this but the future does not seem bright at all, especially for Leah. Im tired of people staring at her . I had a grown woman laughing at the size of her head in a grocery store……..all of this and more is turning me into something im not I find that I am becoming more angry as each day passes, I can actually feel the rage boiling inside of me,. Recently I overheard a college joking and referring to Little people as “freaky midgets” and in the same breath she then says, how much her daughter loves “MIDGETS” because she thinks they are cute, and she would love a picture of Leah so her friends can see what a “MIDGET “baby looks like . My reply to her remarks left the office in silence….. and one person said that could not believe that I could explode in such a big way. I’m so tired of explanations all I want to do is get on with life, and I what Leah and Nicole and Simone to get on with life.

Things are going from bad to worse in Beautiful South Africa, some might say its getting better, but not from were I stand, its got lots of growing to do….. especially for kids with disabilities, they are still hiding in the shadows because society finds it hard to accept them.

http://www.mediamonitoring.org.za/Portals/0/Disabilty_Final.pdf

I was the one who wanted to stay 5 years ago when my husband asked us to leave because I believed things would get better, and could not bear to be away from my mom and dad and sisters and brother they are my family, but now I realize, this is my family now ,and I have to protect them even if it means I have to let go of a piece of my heart ,so I’m considering Leaving South Africa to start a new life for my family.

my girls

A picture says a thousand words

 

One SONG can spark a moment
One FLOWER can wake the dream
One TREE can start a forest
One BIRD can herald spring
One SMILE begins a friendship
One HANDCLASP lifts a soul
One STAR can guide a ship at sea
One WORD can frame the goal
One VOTE can change a nation
One SUNBEAM lights a room
One CANDLE wipes out darkness
One LAUGH will conquer gloom
One STEP must start each journey
One WORD must start a prayer
One HOPE will raise our spirits
One TOUCH can show you care
One VOICE can speak with wisdom
One HEART can know what is true
One LIFE can make a difference.

W. Michael Frye

Title:

Momma’s Boy

Artist: W. Michael Frye

author: Unknown

So Where is Leah?

Now That Leah has almost mastered the art of walking, things have become a bit busy around the Kay household……. I have also come to realize that if we keep this up for a while, there is a good chance I would shed some pounds…… and how you may ask will I get that right? ………………. allow me explain.

I am a mom of three, so its natural to assume that you know what to expect when dealing with baby number 3, well I did not expect Leah to be so FAST, and lets not forget to mention the ability to fit into some “tight fit” places… so one minute you see her and the next minute you don’t……. and not to long after that………….. “MOM LEAH’S IN THE TOY BOX” (I’m sure she does have a little help getting into the toy box) or the one that I’m sure could earned me an Olympic gold for fastest 100meter dash ” MOM LEAH’S CLIMBING UP THE STAIRS!!!”

So ,this weekend the Kay family will be going into town to get a baby safety gate …. because we need to block the stairs, and all those small spaces, but there is one place that is tight, but its Little Leah’s favorite spot, and we decided to keep that one open because she has become a regular with the neighbors and they look forward to seeing her when they get home from work…..

Where is Leah

Im waiting to say hi

Hi everyone!!

Meet Sheba Marithe

Sheba (what a powerful name) was born with Achondroplasia, her very proud aunt contacted me through YouTube after she had seen one of Leah’s videos ….. She told me all about little Sheba who was just a couple of weeks old at the time, …..so everyone I would like to introduce Little Sheba Marithe from the Philippines….. and what an absolute beauty she is…

Prayers for Knoah

Hey everyone, I’m appealing to everyone who reads this blog to keep Knoah in prayer.

For those that don’t know Tonya(Knoahs mom) and little Knoah (What is normal…… check out the link)have taken a very special place in my heart and I have grown to love him so much, and right now he is not doing to well, he was recently admitted to hospital with Influenza and Pneumonia and he need all the positive energy to get better real soon.

So PLEASE lets remember to keep Knoah in our prayers

Little Knoah